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The WDA welcomes your help.

Why the copper head?

Good point!  Wilson Disease patients absorb minerals from their diet, in particular Copper.  Our patients have a mutation that prevents the proper removal of excess copper.  The result is terminal if not treated.  Copper can accumulate in the brain and liver, muscles and eyes and frankly it can appear anywhere in the entire body in unhealthy amounts.  We think that is why our patients present the disease in many ways and are so difficult to diagnose.  Some may have liver failure, others may have neurological effects but there are many other conditions depending on where the excess copper accumulated.  Our current research project was designed to help with better diagnosis, better treatments and lead to a cure.

We invite you to look at the information on our website.  We are trying to create awareness of this disease that most people never heard of and sometimes physicians too.  There are many patient stories in their own words in a section called Wilson’s Warriors.

We also ask, that if our message touches your heart to donate now to the first research project of its kind in the world.  We have no government funding.  We have three billboard ads running that were kindly donated by Interstate Outdoor Advertising, LP.  We are using the total donations for each one to determine which one was liked best.  This donation link is for the copper head billboard.

About you the donor

This section is about you, the donor.  We use the information to send your tax receipt and thank you.  Your email address is the easiest method for us to tell you important informaton.  Your mailing address muight be used if you are a member receiving the Copper connection newsletter or for those with no email address.

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The special person you are honoring

If you are honoring someone or giving in their memory please use this section to provide information so that we can itell  them or someone else that you choose.  Either an address or email address will work.

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You can manage your Wilson Disease profile. 

If you would like to manage your Wilsons Disease Association account (i.e., view and print donation history, update profile, etc.), please create a login name and password below. That means enter changes of address, list family members, change of phone number and look at your donation history.

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Jean P. Perog
Jean P. Perog President
Jean is a retired CPA living in Merritt, British Columbia. She has WD and has a brother with WD. Jean also served as Treasurer of the Wilson Disease Association and is an active volunteer in her community.
Carol Terry
Carol Terry Vice President
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She also served as Vice-President, Treasurer and Secretary.
Mary L. Graper
Mary L. Graper VP Scientific Affairs
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Jeanne A. Friedman
Jeanne A. Friedman Secretary
Jeanne is a Licensed Clinical Social Worker and has WD. She has been with Wilson Disease Association since 2013 and lives in Kew Gardens, New York.
Stephen Walsh
Stephen Walsh Treasurer
Stephen lives in Boulder, Colorado and has a daughter with WD. He went to college at the University of Colorado and graduated with a B.S. in finance.

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