Administration

Connect with Wilson Disease Association

Send Email

Physician Contacts

List of Physicians and Institutions in Your Area

View Contacts

Support Contacts

Individuals who can offer Support and Information

View Contacts


The WDA welcomes your help.

You are on the donation page.

Why the carrot?
 
We admit that the carrot does not have a genetic mutation but it does make our point.  The carrot’s shape was affected by the soil conditions and minerals it absorbed while growing.  Like the carrot, Wilson Disease patients absorb minerals from their diet, in particular Copper.  Our patients have a mutation that prevents the proper removal of excess copper.  The result is terminal if not treated.  Our patients present the disease in many ways.  Some patients end up with twisted limbs.  Some patients’ limbs twist from the drugs used to remove the excess copper.  At this time we don’t know what will happen to each patient.

We invite you to look at the information on our website.  We are trying to create awareness of this disease that most people never heard of and sometimes physicians too.  There are many patient stories in their own words in a section called Wilson’s Warriors. We also ask, that if our message touches your heart to donate now to the first research project of its kind in the world.  We have no government funding.  We have three billboard ads running that were kindly donated by Interstate Outdoor Advertising, LP.  We are using the total donations for each one to determine which one was liked best.  our goal was to get new people to our website and learn about Wilson Disease.  This donation link is for the carrot billboard.

About you the donor

This section is about you, the donor.  We use the information to send your tax receipt and thank you.  Your email address is the easiest method for us to tell you important informaton.  Your mailing address muight be used if you are a member receiving the Copper connection newsletter or for those with no email address.

-

The special person you are honoring

If you are honoring someone or giving in their memory please use this section to provide information so that we can itell  them or someone else that you choose.  Either an address or email address will work.

-

You can manage your Wilson Disease profile. 

If you would like to manage your Wilsons Disease Association account (i.e., view and print donation history, update profile, etc.), please create a login name and password below. That means enter changes of address, list family members, change of phone number and look at your donation history.

Security
NeonCRM by Neon One
Jean P. Perog
Jean P. Perog President
Jean is a retired CPA living in Merritt, British Columbia. She has WD and has a brother with WD. Jean also served as Treasurer of the Wilson Disease Association and is an active volunteer in her community.
Carol Terry
Carol Terry Vice President
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She also served as Vice-President, Treasurer and Secretary.
Mary L. Graper
Mary L. Graper VP Scientific Affairs
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Jeanne A. Friedman
Jeanne A. Friedman Secretary
Jeanne is a Licensed Clinical Social Worker and has WD. She has been with Wilson Disease Association since 2013 and lives in Kew Gardens, New York.
Stephen Walsh
Stephen Walsh Treasurer
Stephen lives in Boulder, Colorado and has a daughter with WD. He went to college at the University of Colorado and graduated with a B.S. in finance.

Search Our Site